Kidney cancer

Submitted by annettereynolds on Wed, 05/06/2019 - 16:50

I’m looking for some tips on how to get back to Normal... is there such a thing ....

so from going from a healthy 44 year old who just had a bad shoulder I rolled over in bed one night and my left side felt hard.. so off to the doctors I went .. he thought my kidney was swollen, 2 days later and an ultra sound scan I was being told I probably had a large tumour and in his words 99% cancer and it needed to come out ...

so had surgery last October and 4 weeks ago had 2 section of my right lung removed due to an enlarged lymph node... 

im doing ok and went back to work this week but can slowly feel myself slipping into something that I’m not sure what it is..... I’m not sure what normal is meant to feel like but I certain,y don’t feel normal like I did before and wondering how I’m meant to deal with it 

help !!!

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Anonymous (not verified)

From one Annette to another! Also had KC same as you - open radical nephrectomy June 2018. I can so relate to what you're saying. After diagnosis and whilst waiting for op I was fine - I had a plan, I knew what was happening. Post-op, you're told to go home and be happy … and that's basically it. No point of contact, no treatment (other than 6 monthly bloods/CT scans) … you feel adrift. Your whole world has been rocked but your on your own to deal with it. It's taken me 12 months to get into a decent headspace again. My body is not the same as before the op - I don't recall being given much info about this, so you do worry if it's 'normal'. I veer from trying to be ultra-healthy to thinking 'whats the point'!!! At the moment I'm in a 'fake it, fake it, till you make it' phase … it's all good, the diary is full of good things and trying not to think about what if (despite the constant reminders from my body). Next CT scan is coming up next month but I'm visualising it all being clear, and carrying on booking things to look forward to. No easy answers Annette but I'm just trying to stay positive, enjoying life, not beating myself up too much and trying not to overthink!! Good luck.