So tired of being tired.

Submitted by Jackie Barnett on Tue, 31/07/2018 - 18:33

Hi I was diagnosed with chronic myeloid leukaemia 24 years ago this coming September.  Having to  inject myself everyday with medication (interferon) was very debilitating . So when I was put on a tablet called gleevec. Which is a chemo drug that I have to take everyday. I was told this would improve my energy,  I was so hopeful of getting back to a nearly normal life, I was wrong.  Although it does give me a bit more energy,  I am still struggling with fatigue and am now resigned to being like this always.  I'm so lucky to survive, as was only given 3 to 5 years to live. The fog brain that never goes away and not being employable because of fatigue,  makes me  feel like I am fighting 2 illnesses at the same time.  Although I am so happy to be alive, at times I am just tired of being tired.  I would love to know how other survivors cope and have tips on coping with their illness.

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